Posts Tagged ‘Pediatric Neuroimmune Disorders’
Official Recognition: PANS Joins PANDAS on the NIH Rare Disease List
Big news for our community! We are thrilled to share that the Genetic and Rare Diseases Information Center (GARD), which is managed by the National Institutes of Health (NIH), has officially added Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) to its list of rare diseases. If you’ve been in this fight for a while, you know how…
Read MorePANS/PANDAS Insurance Mandates: A State-by-State Guide to Your Rights
If you are reading this, you likely know the heart-shattering experience of watching your child change overnight. One day they are themselves: happy, curious, and thriving: and the next, they are grappling with a sudden onset of severe anxiety, OCD, tics, or personality changes. This is the reality of PANS/PANDAS (Pediatric Acute-onset Neuropsychiatric Syndrome and…
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