Resources & Education
Official Recognition: PANS Joins PANDAS on the NIH Rare Disease List
Big news for our community! We are thrilled to share that the Genetic and Rare Diseases Information Center (GARD), which is managed by the National Institutes of Health (NIH), has officially added Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) to its list of rare diseases. If you’ve been in this fight for a while, you know how…
Read MoreA Blueprint for PANS/PANDAS Care: New Landmark Paper from the U of A CPAE Center of Excellence
For many families navigating the world of Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections (PANDAS), the journey to a diagnosis is often marked by confusion and a sense of being unheard. At The PACE Foundation, we have spent over a decade working to change that narrative. Today, we…
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