Insurance & Access
PANS/PANDAS Insurance Mandates: A State-by-State Guide to Your Rights
If you are reading this, you likely know the heart-shattering experience of watching your child change overnight. One day they are themselves: happy, curious, and thriving: and the next, they are grappling with a sudden onset of severe anxiety, OCD, tics, or personality changes. This is the reality of PANS/PANDAS (Pediatric Acute-onset Neuropsychiatric Syndrome and…
Read MoreMajor Win: Aetna Now Covers PANS and PANDAS Treatments (Including IVIG!)
If you’ve ever spent hours on hold with an insurance company only to be told that your child’s life-altering symptoms are “behavioral” or “experimental,” take a deep breath. We have some news that might actually make you want to do a little happy dance in your kitchen (or at least exhale that breath you’ve been…
Read MoreA Blueprint for PANS/PANDAS Care: New Landmark Paper from the U of A CPAE Center of Excellence
For many families navigating the world of Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections (PANDAS), the journey to a diagnosis is often marked by confusion and a sense of being unheard. At The PACE Foundation, we have spent over a decade working to change that narrative. Today, we…
Read MorePANZYGA IVIG Study Updates: Promising Results for PANS/PANDAS Research
While the data from the IVIG trial is under review, we are pleased that Octapharma has officially released a statement regarding the IVIG trial. Below is an excerpt from their announcement: “From baseline (week 0) to week 9, there was a mean improvement of 31.1% (SD 40.68) in the PANZYGA® group CY-BOCS score as compared…
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