Understanding the Numbers: Why PANS/PANDAS is Classified as a Rare Disease

By PACE Foundation | June 1, 2026 |
A professional medical stethoscope resting on a clean, modern desk next to a printed research document, symbolizing the intersection of clinical care and scientific progress.

Since the recent announcement that PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) has officially joined the 2020 listing of PANDAS on the NIH Genetic and Rare Diseases (GARD) directory, the PACE Foundation has received inquiries from our community about PANS/PANDAS prevalence, federal recognition, and what the word “rare” really means. For many families, that label lands with…

Read More