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Posts Tagged ‘PANS’

Official Recognition: PANS Joins PANDAS on the NIH Rare Disease List

By PACE Foundation | May 12, 2026 | 0
A young boy and girl with their mother looking up at a bright window with hope, symbolizing the official recognition of PANS on the NIH Rare Disease List alongside PANDAS.

Big news for our community! We are thrilled to share that the Genetic and Rare Diseases Information Center (GARD), which is managed by the National Institutes of Health (NIH), has officially added Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) to its list of rare diseases. If you’ve been in this fight for a while, you know how…

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  • Historic Win: PANS Is Being Added to ICD-10
  • Understanding the Numbers: Why PANS/PANDAS is Classified as a Rare Disease
  • Official Recognition: PANS Joins PANDAS on the NIH Rare Disease List
  • PANS/PANDAS Insurance Mandates: A State-by-State Guide to Your Rights
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