Learn About Our
Goals and Vision
PACE is among the top echelon of non-profit groups focused on CPAE/PANS research nationwide and indeed globally. PACE brings together its partners to support researchers and accelerate science to develop new advanced treatment therapies. Advancements will continue to be achieved from the Foundation’s devotion to its ongoing goals.
Assist Medical Universities
Aid in establishing the CPAE/PANS multi-discipline clinical model in top universities across North America.
Current CPAE/PANS Clinics:
- University of Arizona - Tucson
- University of California - Los Angeles
- University of Arkansas
- Dartmouth University
- Greater Regional Health Center - Creston Iowa
- University of Wisconsin - Madison
- Stanford University (CPAE/PANS Research Partner)
- Harvard University (CPAE/PANS Research Partner)
- The Hospital for Sick Children - Toronto
Produce Clinical Trials
Assist CPAE/PANS Consortium university medical centers to provide evidence-based data on the effectiveness of current and future treatment protocols.
Continue to secure funding from donors and sponsors to address patient needs, including continuity of medical care with patient’s pediatrician post CPAE care.
Create a Network of Clinics and Centers
Our goal is to have networks across the US where children affected with post infectious autoimmune Neurological Disorders will be treated and where researchers and physicians can collaborate on best practices, research, treatments, etc.
Education and Outreach Programs
Provide current education and outreach programs to the medical community to broaden the understanding of PANS/PANDAS, etc.
Provide Treatment Options
Promote, participate in and assist with research to provide physicians improved diagnostic and treatment options.
Monitor and develop public policy programs focusing on issues such as insurance reimbursement, patient confidentiality, safety and availability of IVIG therapy and maintain and enhance patient access to treatment options.
The PACE Foundation has made amazing strides in a very short amount of time, thanks to the relentless efforts and charitable donations of so many people across the country.
2021: Joined With Arkansas Legislature
to recognize the Arkansas clinic as a CPAE Center of Excellence and to establish laws which insured medical treatment for all Arkansas children affected by CPAE disorders
2021: Promoted Creation Of A PANS/CPAE Clinic At The Greater Regional Heath Center
- Creston Iowa as regional clinical center for multi-discipline based treatment and participation in clinical research for CPAE disorders
2020: Partnered With The Existing PANS Clinic At Dartmouth
to facilitate expansion of multi-discipline clinical research and treatment protocol
2020: Partnered With The Existing PANS Clinic at Harvard/Mass General
to expand multi-discipline clinical research and treatment protocol
2020: Promoted Creation Of A CPAE Center of Excellence At The University Of Arkansas
to provide world-class multi-discipline diagnosis, treatment, research and physician education in a leading medical university environment
2019-2020: Collaborated with Octapharma
to launch the first-ever global pediatric IVIG study for the postinfectious autoimmune encephalitis neurological disease. Current CPAE/PANS Clinics (U of A, Stanford, UCLA, University of Wisconsin, Harvard University, University of Arkansas and Banner Desert) are participants in this global clinical trial.
2019: Promoted Creation Of A PANS/CPAE Clinic At The University Of Wisconsin
as regional clinical center for multi-discipline university based treatment and research for CPAE disorders.
2018: Partnered with the existing PANS clinic at Stanford University
to expand multi-discipline clinical research and treatment protocol.
2018: Helped create a second Arizona CPAE clinic
at Banner-Cardon Children’s Hospital in Phoenix to treat growing demand for clinical treatment of children affected with post infectious autoimmune encephalopathy.
2017: Initiated and partnered with Arizona Medicaid (AHCCCS)
to expand insurability of treatments prescribed by CPAE Centers and Clinics.
2016: Helped establish the CPAE/PANS Center of Excellence
at Banner-University of Arizona in Tucson to provide world-class multi-discipline diagnosis, treatment, research and physician education in a leading medical university environment.
2015: Joined with AZ Legislature
to establishment Arizona House Committee on CPAE Disorders and with AZ Department of Health to develop state healthcare webpage about CPAE disorders.
2014: Met with the National Institute of Health (NIH)
to begin collaboration on developing multi-discipline clinics based on published PANS/PANDAS diagnosis and treatment guidelines.
The PACE Foundation is proud to team up with the following partners in the fight against CPAE.