Who We Are

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Goals and Vision

PACE is among the top echelon of non-profit groups focused on Children's Postinfectious Autoimmune Encephalopathy (CPAE)  research nationwide and indeed globally. PACE brings together its partners to support researchers and accelerate science to develop new advanced treatment therapies. Advancements will continue to be achieved from the Foundation’s devotion to its ongoing goals.

  • Assist Medical Universities

    Aid in establishing the CPAE/PANS multi-discipline clinical model in top universities across the world.

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  • Produce Clinical Trials

    Assist CPAE/PANS Consortium university medical centers to provide evidence-based data on the effectiveness of current and future treatment protocols. 

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  • Create a Network of Clinics and Centers

    Our goal is to have networks across the US where children affected with CPAE disorders such as PANS/PANDAS will be treated and where researchers and physicians can collaborate on best practices, research, treatments, etc.

  • Education and Outreach Programs

    Provide current education and outreach programs to the medical community to broaden the understanding of PANS/PANDAS and CPAE disorders. 

  • Provide Treatment Options

    Promote, participate in and assist with research to provide physicians improved diagnostic and treatment options.

  • Develop Policies

    Monitor and develop public policy programs focusing on issues such as insurance reimbursement, patient confidentiality, safety and availability of IVIG therapy and maintain and enhance patient access to treatment options.

  • Provide Funding

    Continue to secure funding from donors and sponsors to address patient needs, including continuity of medical care with patient’s pediatrician post CPAE care.

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Our Story

The PACE Foundation has made amazing strides in a very short amount of time, thanks to the relentless efforts and charitable donations of so many people across the country.

  • 2024: Researching potential sites for first European CPAE Clinic

    to provide additional care and resources for treatment in Europe

  • 2023: Facilitated completion of PANS incidence report

    to provide the first general pediatric population report and support additional research 

  • 2023: Interceded with AZ Legislators to re-open the state's ABRC fund

    to enable $3.0M in funding for the CPAE Center of Excellence in Tucson over the next 3 years

  • 2023: Assisted IVIG Trial advancement globally

    to support current and add new sites in the U.S., Sweden, and Italy

  • 2021: Joined With Arkansas Legislature

    to recognize the Arkansas clinic as a CPAE Center of Excellence and to establish laws which insured medical treatment for all Arkansas children affected by CPAE disorders

  • 2021: Promoted Creation Of A PANS/CPAE Clinic At The Greater Regional Heath Center

    - Creston Iowa as regional clinical center for multi-discipline based treatment and participation in clinical research for CPAE disorders

  • 2020: Partnered With The Existing PANS Clinic At Dartmouth

    to facilitate expansion of multi-discipline clinical research and treatment protocol

  • 2020: Partnered With The Existing PANS Clinic at Harvard/Mass General

    to expand multi-discipline clinical research and treatment protocol

  • 2020: Promoted Creation Of A CPAE Center of Excellence At The University Of Arkansas

    to provide world-class multi-discipline diagnosis, treatment, research and physician education in a leading medical university environment

  • 2019-2020: Collaborated with Octapharma

    to launch the first-ever global pediatric IVIG study for the postinfectious autoimmune encephalitis neurological disease.  Current CPAE/PANS Clinics (U of A, Stanford, UCLA, University of Wisconsin, Harvard University, University of Arkansas and Banner Desert) are participants in this global clinical trial.

  • 2019: Promoted Creation Of A PANS/CPAE Clinic At The University Of Wisconsin

    as regional clinical center for multi-discipline university based treatment and research for CPAE disorders.

  • 2018: Partnered with the existing PANS clinic at Stanford University

    to expand multi-discipline clinical research and treatment protocol.

  • 2018: Helped create a second Arizona CPAE clinic

    at Banner-Cardon Children’s Hospital in Phoenix to treat growing demand for clinical treatment of children affected with post infectious autoimmune encephalopathy.

  • 2017: Initiated and partnered with Arizona Medicaid (AHCCCS)

    to expand insurability of treatments prescribed by CPAE Centers and Clinics.

  • 2016: Helped establish the CPAE/PANS Center of Excellence

    at Banner-University of Arizona in Tucson to provide world-class multi-discipline diagnosis, treatment, research and physician education in a leading medical university environment.

  • 2015: Joined with AZ Legislature

    to establishment Arizona House Committee on CPAE Disorders and with AZ Department of Health to develop state healthcare webpage about CPAE disorders.

  • 2014: Met with the National Institute of Health (NIH)

    to begin collaboration on developing multi-discipline clinics based on published PANS/PANDAS diagnosis and treatment guidelines.

Our Team

Battling CPAE takes a dedicated team of amazing individuals all coming together for the greater good. The PACE Foundation is eternally grateful for the continuing contributions of the following members.

Meet The Team

PACE Partnerships

The PACE Foundation is proud to team up with the following partners in the fight against CPAE.

octapharma
toyota
Banner University

Become a Partner

If you'd like to learn more about becoming a partner, get in touch!

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